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A Protocol for Dying

1610 pointsby aleksiabout 9 years ago

70 comments

bsandertabout 9 years ago
From personal experience, I can very much relate to and agree with this piece. My father went through a similar process: cancer (melanoma) – two years of treatment and coming to terms with the facts – euthanasia. As a family, we have been very matter-of-fact about it, which was definitely something he encouraged and participated in. We frequently talked about all aspects of his disease, the future, how it affected him and us. Sometimes one of us sighed that it would have been so much better if he would have suddenly died in his sleep but I always disagreed with that, it would just have come with a different set of emotions and grieving. I am actually very happy that we were able to share parts of this process with each other while he was still around.<p>The weekend before his death, our house was filled with people who worked up the courage to come say goodbye, he sat among them in the living room and took a few minutes in person with everyone as much as his state allowed. I sat on his bed as he was treated with euthanasia, which was one of the most intense experiences of my life. I still miss the man every day, but because of the process we had together, I have nothing but fond memories of the times he was still there, including the very hard periods of time that come with a disease like this.<p>This turned into a bit more text than I intended but my point is this: If you ever have a choice in the way you are to die, take heed of the points in this story. It may seem brutal at times to be as honest and open as you can about such an intimate process, but having gone through it once, I have absolutely no regrets. I wish Pieter and his loved ones all the best in the coming times.
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anexprogrammerabout 9 years ago
Good journey sir. Thank you for this piece. I feel your model should become an international standard.<p>I am saddened to see you are so young.<p>&gt; ... and enforce the barbaric torture of decay and failure. It&#x27;s especially relevant for cancer, which is a primary cause of death<p>I&#x27;m glad you find yourself somewhere enlightened. As someone who watched his father die of cancer over 2.5-3 years in the UK it almost robbed me of my father for a while. The last six months were brutal. He was either away with the fairies on Morphine, or in his increasingly rare lucid moments, pleading with NHS to reduce his dose. He chose pain and lucidity over a zombie state yet was often denied that choice as the system sought to reduce pain above all. He made it plain when he could, many times during the end months, that he didn&#x27;t want to play this game any more.<p>Post death, our memories were of the brutality, of the incoherent husk on drugs who had had enough long since, of the ever increasing dosages and tripping in the system&#x27;s wish to reduce pain, of the morphine smell. Of being increasingly worn down by it. It was harder in those early weeks after death to remember the real man, so defined by his mind, intelligence, humour and practical jokes. I still miss my best friend.<p>The UK is no nearer enlightenment on this topic today than 20 years ago when my father died. The views of those claiming a hotline to god, in our increasingly atheistic country, were exceptionally hard to hear, yet always sought in any media discussion of euthanasia.<p>I am thankful your children and other family will have the blessing of kinder memories.
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danburgoabout 9 years ago
These words hit close to home. My dad just passed away from cancer&#x2F;diabetes in Florida and had to endure the &quot;barbaric torture of decay and failure&quot;. Basically 4 months suffering in bed until he eventually denied eating anything and his liver failed. I asked the nurses repeatedly if there was anything to help him go or pass and there was nothing. Something&#x27;s got to change in the US, we treat animals better than humans at the end of life<p>Thank you for your words
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jaseemabidabout 9 years ago
To anyone who does not know, Pieter Hintjens is the CEO of iMatix, where they build AMQP, ZMQ etc.<p>Take care &#x2F;u&#x2F;PieterH.<p>1. <a href="https:&#x2F;&#x2F;en.wikipedia.org&#x2F;wiki&#x2F;Pieter_Hintjens" rel="nofollow">https:&#x2F;&#x2F;en.wikipedia.org&#x2F;wiki&#x2F;Pieter_Hintjens</a> 2. <a href="https:&#x2F;&#x2F;news.ycombinator.com&#x2F;item?id=11520888" rel="nofollow">https:&#x2F;&#x2F;news.ycombinator.com&#x2F;item?id=11520888</a> 3. <a href="https:&#x2F;&#x2F;twitter.com&#x2F;hintjens" rel="nofollow">https:&#x2F;&#x2F;twitter.com&#x2F;hintjens</a>
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netgustoabout 9 years ago
I wanted to express my compassion, then I figured out that&#x27;s not what you need. But then, we never shared any good moments to speak about, right ? You&#x27;re a stranger to me, and yet I can&#x27;t help but feeling I know you better after reading your letter than many people I meet on a regular basis. And it feels warm inside. Thank you for taking the time to express this.
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dirkthemanabout 9 years ago
I always like to think that we don&#x27;t really die, we live on in the memories of our loved ones. Even if you don&#x27;t leave a massive legacy behind like you. When I think back of the good moments with my grandparents I&#x27;m not sad, I&#x27;m happy I got the chance to have experienced them in the first place.<p>Thank you Pieter, and godspeed on your big journey, whereever it will take you.
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goldenkeyabout 9 years ago
It is not every day we see much written about death on upvote lists like Reddit or HN. So it means a ton to see the perspective of a smart hacker who is indeed met with the undeniable future of his own time. I&#x27;m only 26 and I have been thinking about life and death a lot lately. Not because I would commit suicide -- but rather because the very stupifying fact of &quot;I&#x27;m alive!&quot; evades most of media and content we consume.<p>But it has huge implications for us in the very soon battle for understanding if turing-complete high-level-abstracting machines would experience &quot;consciousness&quot; like we do. In terms of medical care, rights, and other aspects for thinking entities.<p>And Pieter, if you are reading this, I wish you well in whatever lies ahead for your mind, and for your actions which will surely echo through the sands of time for people. Because like you said, even if life is indeed finite -- that we take a sensible approach, our legacy should be able to give us comfort that our actions do get magnified by time -- so do what you love, and it will speak through future generations.
tjholowaychukabout 9 years ago
Wow this really hits home. I can only hope that when it&#x27;s my time that I can go with such class and dignity. My only fear in dying is that I would regret having not lived more, spent more time on things that really matter, or being held back by myself.<p>I couldn&#x27;t agree more about euthanasia, I&#x27;ve always envisioned a Dia de los Muertos style party for when I go :). I would much rather go when people have a chance to see me happy and reminiscing like you mention. I would say thank you for your work, but I know there&#x27;s much more to you than that!
libeclipseabout 9 years ago
Wow, that hit me harder than expected. It&#x27;s rare to see someone talking so frankly about death, and even rarer for something like this to be on the front page.<p>What a legend.
emirozerabout 9 years ago
Pieter, in the article you wrote &quot;Think of the Children&quot; and wanted readers to write stories, which is a really nice idea.. How about we think of the children and donate some money? Is it possible to share a donation address&#x2F;endpoint ?
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Angosturaabout 9 years ago
Well, that&#x27;s embarrassing - I just started weeping in the office. Probably because my own father has been diagnosed with cancer (in his 90s though, ripe old age) and we are both pretty much following the communication guidelines set out in the article.<p>Thanks for posting and thanks to Pieter for writing.
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jimdukabout 9 years ago
Some Hintjens&#x27; quotes -<p>i) &quot;One tactic I used was to take the cult techniques and reverse them&quot;<p>ii) &quot;We create culture by sharing&quot; (extends to a successful project being a culture, a share-alike licence, and a name&#x2F;domain which of course can be forked)<p>There are many others - his writing introduced me to Conway&#x27;s law (was b) - &quot;A software system mimics the structure of the organization that produces it &quot;) - I&#x27;ve only read part of his work, time well spent and good to discuss with programmers and non-programmers - he made me think
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yoodenvranxabout 9 years ago
And this is exactly why euthanasia should be made legal everywhere.<p>If I ever have to die of some horrible disease I want to go on my terms and do exactly like op.
augustlabout 9 years ago
It would be interesting to see how many of us that has had conversations with Pieter Hintjens. I suspect a sizable chunk of the HN crowd has interacted with him. I&#x27;ve enjoyed his company on many conferences, and while he presents himself in a very direct manner, he is also friendly and enjoyable to talk with.
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bcg1about 9 years ago
The first time I came across Pieter was when he was interviewed about ZeroMQ on FLOSS weekly. I&#x27;ve come to find his writing to be engaging and informative, and thank him for that.<p>His series of articles on psychopaths and the havoc they wreak is well worth reading, even if it takes a while to take it all in.<p>My best lesson I learned on programming from Pieter was to use code generators effectively. The advantages cannot be overstated.<p>Thank you Pieter, you will be missed.
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srameshcabout 9 years ago
Been a fan of Pieter Hintjens since 2010 when I found ZeroMQ and read that ZMQ guide which was the most easy to read and fun technical guide that I read ever. I tweeted and he replied back, and I was startstruck by a tech superstar. He was always fun to follow and I remember one of his tweets where he says we don&#x27;t even need fruit sugar, though I never followed that advice :) As graceful as ever. Godspeed Pieter.
bastijnabout 9 years ago
I actually wanted to attend that keynote and now you popup over here. Thought it would be a nice day, some friends &#x2F; colleagues presenting anyway. Somehow my brain wandered off reading this article thinking what would have happened if you could have presented this blog post as a keynote. How would the audience react, would it differ from this where people have more time to digest it? Definitely some awkward social event afterwards I&#x27;d bet.<p>Only thing I missed in your post is a snappy remark to alternative medicine (not expiremental, mind you); would have made it perfect. That stuff usually conflicts with the actual treatment and even if it doesn&#x27;t and people survive they say it is because of the alternative junk instead of the actual treatment they conveniently forget to mention they took as well. You know, these sites that claim it&#x27;s true and proven linking to multiple studies showing it...performed by themselves and published on their own website only.<p>I wish you the most with the time you have left but have no doubt you will make it count.<p>Well, one thing left.<p>This is Bob.<p>Bob is dying.<p>Bob doesn&#x27;t whine or bitch about life being unfair.<p>Bob is one tough motherf<i></i>*er.<p>Be like Bob.<p>.O<p>-|-<p>.&#x2F;\<p>P.s. If you think the stick figure sucks you should see my real drawings.
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jkarnegesabout 9 years ago
I&#x27;ve never known anyone who knew their death was imminent, and it pains me to see cancer strike another beloved member of the tech community, but I am fascinated by how Pieter is handling his situation. Delegating his tasks away, being frank about his condition and its progress, and now this protocol article. Even though his life is being cut way short, it almost seems as if he has <i>extra</i> time to get his ducks in a row and share wisdom. Many others die suddenly or after losing mental faculties and don&#x27;t quite have the same opportunity.
aliostadabout 9 years ago
For those who had the opportunity and pleasure of meeting you personally, the day the news broke out was a black day. You are a person who makes a deep impression, your thoughtfulness and very balanced view and how you articulate them. I now read your writings and find them even more compelling: sharp observation and bravery to spell the truth out.<p>Death is coming to all of us. We all die. Death of some, however, will be a big loss. You, sir, are among them.
dansoabout 9 years ago
This is his last blog post, but according to Github, he&#x27;s still actively contributing code and comments as of 7 hours ago:<p><a href="https:&#x2F;&#x2F;github.com&#x2F;hintjens?tab=activity" rel="nofollow">https:&#x2F;&#x2F;github.com&#x2F;hintjens?tab=activity</a>
fiatjafabout 9 years ago
I must say that the cable joke <a href="https:&#x2F;&#x2F;twitter.com&#x2F;hintjens&#x2F;status&#x2F;722315427200765952" rel="nofollow">https:&#x2F;&#x2F;twitter.com&#x2F;hintjens&#x2F;status&#x2F;722315427200765952</a> was great.
jwildeboerabout 9 years ago
Best thing I ever created with Pieter was stallmanism.com a few years ago. And the beers we drank over the years discussing a wide range of topics while typically being surrounded by people that started to shake heads after a few minutes of listening in. Moments that will survive everything. Thank you, Pieter. Love you.
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porjoabout 9 years ago
I&#x27;ve seen Pieter speak both in person and on video and it&#x27;s hard not be impressed by his conviction and passion. Clearly a very clever guy with a lot of interesting ideas. Quite a polarizing character by all reports, but one that has made a significant contribution to the open source community nonetheless.<p>Godspeed Pieter.
okreallywtfabout 9 years ago
One thing that I observed the year I lost two great uncles (one from one side of the family and six months later one from the other) to cancer was how easy it is for the closest family to get very tied up in the logistics and medical side that people weren&#x27;t really taking as much time to really talk to them. Granted they weren&#x27;t considered terminal until close to the end.<p>As the younger nephew, I didn&#x27;t feel as much responsibility to be involved with the logistics (it felt more awkward to me but I think it was comforting to the children, spouses etc). So instead of joining in on the doctor&#x2F;prognosis conversations and later the funeral arrangement&#x2F;what to do with the house stuff, I just sat and talked to my uncles instead.<p>I had known both of them my entire life but I realized I knew almost nothing about them. All our interactions were just uncle to nephew, family occasions kind of stuff, but by this time I was an adult (just barely), and all the sudden we were just two people talking and I learned more about them in a 20 minute session than the prior 20+ years. Some other family who were on the periphery of the conversation confided later that they regretted not having those moments while they had the chance. I didn&#x27;t even talk that much, just enough to make it a two way conversation, but I found my uncles both were very at peace but wanted to reminisce and tell stories they probably hadn&#x27;t told anyone in decades. One uncle told me about joining the military during Korea and having gone through all the training and finally being sent all the way there to have the war end practically the day he got there and he ended up being sent right back and what a strange conflicted experience it was for him.<p>I&#x27;ve started visiting with my other elderly family a lot more since then and have had some similar conversations that didn&#x27;t require anyone being terminally ill, but somehow that seems to make those conversations a little easier.<p>I can definitely agree with the piece, especially about what to say and what not to. I&#x27;m not expert by any means, I just did the only thing that felt natural whatsoever: just talk to them like a person and let what happens happen. Granted I had the benefit of the fact that they were well taken care of by their children and others, otherwise it would have been much more difficult.
weixiyenabout 9 years ago
The level of courage and calmness it takes to write something like so soon after the news he just got. Dude is top fucking percentage.
gerbillyabout 9 years ago
It&#x27;s wonderful to see someone approaching death with such a calm and balanced state of mind.<p>May your wisdom and compassion live on in your children and in all the other people you have influenced.
nickpsecurityabout 9 years ago
Tribute to Hintjens&#x27; great work and ideas. Man is like the Bernstein of enterprise software with great balance of unconventional design, correctness, performance, and innovation. Here&#x27;s a list of some of his work for those interested:<p>A great write-up on his theory of model-driven development and the tech that underpinned most of iMatix:<p><a href="https:&#x2F;&#x2F;www.google.com&#x2F;url?sa=t&amp;rct=j&amp;q=&amp;esrc=s&amp;source=web&amp;c.." rel="nofollow">https:&#x2F;&#x2F;www.google.com&#x2F;url?sa=t&amp;rct=j&amp;q=&amp;esrc=s&amp;source=web&amp;c...</a>.<p>Their website is a slide-show demonstrating their amazing work:<p><a href="http:&#x2F;&#x2F;www.imatix.com&#x2F;" rel="nofollow">http:&#x2F;&#x2F;www.imatix.com&#x2F;</a><p>Generating servers from state machines and such:<p><a href="http:&#x2F;&#x2F;hintjens.com&#x2F;blog:75" rel="nofollow">http:&#x2F;&#x2F;hintjens.com&#x2F;blog:75</a><p>SMT kernel for portable, multi-threaded, fast code:<p><a href="http:&#x2F;&#x2F;legacy.imatix.com&#x2F;html&#x2F;smt&#x2F;" rel="nofollow">http:&#x2F;&#x2F;legacy.imatix.com&#x2F;html&#x2F;smt&#x2F;</a><p>Web server (old and new) <a href="https:&#x2F;&#x2F;en.wikipedia.org&#x2F;wiki&#x2F;Xitami" rel="nofollow">https:&#x2F;&#x2F;en.wikipedia.org&#x2F;wiki&#x2F;Xitami</a> <a href="http:&#x2F;&#x2F;xitami.wikidot.com&#x2F;main:start" rel="nofollow">http:&#x2F;&#x2F;xitami.wikidot.com&#x2F;main:start</a><p>One of best middleware ever <a href="http:&#x2F;&#x2F;zeromq.org&#x2F;" rel="nofollow">http:&#x2F;&#x2F;zeromq.org&#x2F;</a>
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paulsutterabout 9 years ago
Pieter came to work with us on a project in San Francisco and I&#x27;m so happy that I could find this post through hacker news so soon after he posted it. I don&#x27;t know if he will get my email but I&#x27;m glad I had a chance to send it.
ascotanabout 9 years ago
Another sad day for the software community. I&#x27;m a big fan of 0mq and the work that Pieter has done.<p>As for the euthanasia, my wife&#x27;s aunt died of cervical cancer and it was very rough, not only on her, but on her entire family. It&#x27;s not an exaggeration to say that they likely all have PTSD from the experience. I&#x27;m not a proponent of euthanasia but I can see the appeal. It probably depends a lot on the individual situation.
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domrdyabout 9 years ago
Great article, thanks for sharing this. I have a question: how would you tell your so to &quot;move on&quot; after you are gone? Was this even brought up ? I&#x27;d imagine this to be a very difficult, yet necessary conversation to have.
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educarabout 9 years ago
This is easily one of the most courageous articles I have read. I can only hope to have the same courage when dying. Thanks for inspiring me, Pieter.
isnulloremptyabout 9 years ago
I didn&#x27;t know Pieter but contributed to CZMQ which was a excellent example of how C can be well written. ZMQ was like having lego blocks for me had so much fun playing with it, he is a profound thinker.
lemonadeabout 9 years ago
Hi Pieter,<p>I&#x27;m not sure how long you&#x27;ll keep on reading stuff, but rest assured me and many others will cherish the very fond memories of collaborating with you - you&#x27;ve always had a sharp wit and a practical sort of unconventionalism that gets things done. We have much to thank you for.<p>We worked together on Digistan and the &quot;The Hague Declaration&quot;, which I helped host in The Hague - and I think it still is a strong statement that is worth repeating. People can sign that declaration:<p><a href="http:&#x2F;&#x2F;www.digistan.org" rel="nofollow">http:&#x2F;&#x2F;www.digistan.org</a><p>I&#x27;m very much saddened to hear about your disease - and deep respect for the way you handle this unannounced change of plan. I hope your remaining time will be spent with those you love looking back on a rich life where you&#x27;ve left the world better than it is - and got the max out of it. I&#x27;ll send you an email, so that when your kids are older and want to know about the things you&#x27;ve done they can contact me. Take care, my friend.
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ak39about 9 years ago
There are many days I too feel I&#x27;m ready to die. But then realize I&#x27;m not ready. Couldn&#x27;t understand why.<p>Reading what Pieter just wrote makes realize that I lack fortitude in one aspect: compassion. Pieter&#x27;s words confirms to me that one needs to wield formidable muscles in the compassion department for one to be at peace and be ready to die.<p>Great man, Pieter.
jsharfabout 9 years ago
Pieter, after reading your article I feel connected to you, despite us never having met.<p>Thank you for everything you&#x27;ve done as a blog writer and as a member of the open source community.
davesqueabout 9 years ago
Pretty sobering stuff. I watched my mother die of cancer about a year ago. Sitting next to her, as she moved back and forth in bed, incoherent, was....well...pretty surreal. Honestly, I don&#x27;t get this world we live in. We pop in from nowhere and then live in fear of popping out in an untimely way. I kinda get where this man is coming from. A lot of cancer therapy just seems like such a long-shot. And it&#x27;s your life on the line (including your sanity). Bouncing around from doctor to doctor, treatment to treatment is enough to break people. I mean totally break people. Financially and spiritually. It didn&#x27;t break my Mom. She always had hope actually and never wanted to die. But I think it would break me.
restalisabout 9 years ago
It&#x27;s strange to see such a protocol, that it was necessary in the first place. I guess people just assumed the wrong things even with their emotional compass as their guide.<p>Thank you Pieter, you&#x27;re truly a giver till the last drop, and a model to follow!
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jsingletonabout 9 years ago
I can highly recommend &quot;Culture &amp; Empire - Digital Revolution&quot;, a very interesting read.<p>I think this is a great request: &quot;Find a moment in your own jurisdiction, if it bans euthanasia, to lobby for the right to die in dignity.&quot;
bikamonkiabout 9 years ago
A terrible earthquake hit my country last saturday, killing hundreds in seconds. Before, I would have said: at least their death was quick. But now I think like Pieter: the best way to die is when you have enough time to say goodbye, even if that means painful cancer.<p>Goodbye Pieter, go happy knowing that you&#x27;ve put in your kids much more than DNA, they&#x27;re set for an awesome journey!
tie_about 9 years ago
Thank you, Pieter, for your sane approach. The comments here demonstrate aptly the power of your words over the HN community. I lost a father and an in-law to cancer, and your post simply nails the target for me. I wish I&#x27;d read this back then.<p>Then again, as you demonstrate, we need not focus on the things we cannot change. Spending time with regrets is time wasted. Thank you!
dforshtayabout 9 years ago
Thank you, Pieter. This brings up my 80 year-old father&#x27;s death by cancer 8 years ago. The end came less than two weeks after the diagnosis, despite the doctor estimating 3-6 months.<p>Having flown halfway across the USA, I was fortunate to be there for his last two hours, unlike one brother, who arrived a day late. I wish I had come with happy memories to share, but the suddenness and shock of seeing him holding on by a slender thread obliterated such thoughts. I took over for the at-home hospice nurses and ministered care according to his heart and respiratory rates.<p>My mother had prayed in the next room, &quot;Lord, take this good man,&quot; and it was obvious that his end was imminent.<p>Oddly, my experience felt similar to seeing the Twin Towers burn from a mile across the Hudson River. My eyes were riveted to the inferno until I turned to look away, then magically believed that when I returned my gaze everything would be right and intact.<p>Dad&#x27;s eyes never opened, but his expression brightened when I said, &quot;Dad, it&#x27;s Dave.&quot; After hearing my mom&#x27;s prayer, I busied myself with his nursing care, but was stymied about what to say. I had already told him the most important things on the phone after hearing the news from him that he was dying without regrets. He was lucid and conversant then. Now, he was teetering between states of coma and listening heart.<p>When my mother stepped into the hallway outside their condo, I counted his respirations – 32 per minute – and gave him a dropper of lorazepam, as directed. I said to him: &quot;I can&#x27;t ask you to stick around.&quot; I wanted him to know it was okay to let go but had no other words to say it. Facially, he shrugged. Thus did he begin his final retreat. I called my oldest brother and his son into the room and we called his name as he drew his last breaths. When Mom returned it was all over.<p>I still wonder, if I had come with loving memories to share, would he have held on through the night and into the next morning, long enough for his middle son to say goodbye?<p>It could be my life&#x27;s project to write about my father, but my life has too much urgency to reflect so long on the past. Maybe things will settle enough for that in the future, but not now.<p>I am grateful for your valuable experience and will explore your writings. You are helping your family and others with everything you&#x27;ve done. I believe you are having a marvelous adventure.<p>David Forshtay
rabeeshkumarabout 9 years ago
The truth, is modern medicine treating about cancer (chemotherapy, immunotherapy, ..) is putting a bandage on a real underneath problem. It will comes again, may be take some years. One of good actor from my place is passed away with cancer few weeks before <a href="https:&#x2F;&#x2F;en.wikipedia.org&#x2F;wiki&#x2F;Jishnu" rel="nofollow">https:&#x2F;&#x2F;en.wikipedia.org&#x2F;wiki&#x2F;Jishnu</a>. He also did chemotherapy few years before.<p>We should care about these deadly diseases, or DNA mutation, what causing it. Any bug happens, we can resolve it, but losing a person we can&#x27;t recover.<p>I am the one of person who also suffering from autoimmune disease.<p>Sorry for my English.
_pmf_about 9 years ago
Maybe his publishers could increase revenue percentages for him from his books sales; I did not even know he was an author, otherwise I would have bought one or two of his books earlier.
ameliusabout 9 years ago
The best protocol is to just ignore it. Animals do it, so why shouldn&#x27;t we?<p>This approach is also fully compatible with the idea that life itself is a &quot;terminal disease&quot;.
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chaostheoryabout 9 years ago
The rules may be different for children:<p><a href="http:&#x2F;&#x2F;www.cnn.com&#x2F;2013&#x2F;05&#x2F;24&#x2F;tech&#x2F;gaming-gadgets&#x2F;cancer-video-game&#x2F;" rel="nofollow">http:&#x2F;&#x2F;www.cnn.com&#x2F;2013&#x2F;05&#x2F;24&#x2F;tech&#x2F;gaming-gadgets&#x2F;cancer-vid...</a><p><a href="http:&#x2F;&#x2F;www.hopelab.org&#x2F;portfolio&#x2F;re-mission-2&#x2F;" rel="nofollow">http:&#x2F;&#x2F;www.hopelab.org&#x2F;portfolio&#x2F;re-mission-2&#x2F;</a>
scandoxabout 9 years ago
Code Connected got me interested in programming again.<p><a href="http:&#x2F;&#x2F;hintjens.com&#x2F;blog:30" rel="nofollow">http:&#x2F;&#x2F;hintjens.com&#x2F;blog:30</a>
arkangel_72about 9 years ago
I can barely understand his condition.. but its good that he has euthanasia as an option. In my country india Article 21 of our constitution says right to life does not include right to die.. although recently passive euthanasia is allowed i think
BasDirksabout 9 years ago
I have wanted to read up on ZeroMQ. This time I will. It is meaningless in the face of his situation, but I feel like this is how I, as a programmer, can &quot;talk&quot; to him, honor him. I&#x27;m not trying to be sentimental but it feels right.
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rochacbrunoabout 9 years ago
We translated to Portuguese <a href="https:&#x2F;&#x2F;medium.com&#x2F;@rochacbruno&#x2F;um-protocolo-para-morrer-661541f5ab9#.mq6he8rf1" rel="nofollow">https:&#x2F;&#x2F;medium.com&#x2F;@rochacbruno&#x2F;um-protocolo-para-morrer-661...</a>
shanacarpabout 9 years ago
Are you getting fully sequenced before you die, so if there are discoveries later, your kids will have a database of you to compare against?<p>Apparently the cost finally dropped below $1kUSD this year
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fiatjafabout 9 years ago
Someone has to take the Edgnenet project and move it forward!
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wsfullabout 9 years ago
I became an admirer of this man&#x27;s software aesthetic when I first discovered and compiled libero.<p>In my opinion, this is a great loss to the world of programming.
arnold_palmurabout 9 years ago
I lost my dad to cholangiocarcinoma when I was only 7 - rest easy knowing you had a positive impact on the world Pieter.
simsiconabout 9 years ago
Death is a horrible fact for a consciousness, however &quot;being angry or sad at facts is a waste of time&quot;.
doug1001about 9 years ago
thank you for sharing this; thank you for your extraordinary contribution to the open source community; thank you for writing so candidly and so eloquently about the process of building software; and thank you for making we want to be a better developer.
exitabout 9 years ago
when you bring life into this world you condemn it to suffering this.<p><a href="https:&#x2F;&#x2F;en.wikipedia.org&#x2F;wiki&#x2F;Antinatalism" rel="nofollow">https:&#x2F;&#x2F;en.wikipedia.org&#x2F;wiki&#x2F;Antinatalism</a>
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blackflame7000about 9 years ago
Wow. Powerful stuff... Really makes you consider your own mortality.
gm3dmoabout 9 years ago
Pieter, you made the world a better place. Thanks.
throwaway324324about 9 years ago
It seems against protocol to argue with a dying man, but refraining also seems disrespectful to Pieter. I always open the comment section hoping that someone will disagree with the article in a thoughtful way; perhaps it&#x27;s my turn, since I disagree so intensely. Presumably others would like to at least hear the counterpoints.<p>Euthanasia is bad from a practical standpoint, and an evil, because:<p>1. Objectively speaking, euthanasia is suicide, and the killing of an innocent person. If Schwartz killing himself (out of despair for his future, fear of suffering in prison, or otherwise) was a tragedy, why is Pieter&#x27;s upcoming suicide not a tragedy? Is it because his certain death is closer? (This view promotes the idea that a &quot;disabled&quot; life, where one is &quot;unhappy&quot;, or must be cared for at great expense, or is suffering, or (extrapolating) is cryogenically frozen, is not valuable in and of itself; but it is.)<p>2. Suicide increases the risk that friends and family will commit suicide. A search will yield numerous studies: &quot;2.1-fold increased risk of committing suicide&quot;[1], etc. If you kill yourself, you are indirectly killing the people closest to you.<p>3. If you are against the death penalty because we might execute an innocent person, you should be against Euthanasia because we might kill a non-consenting person. This is already the case:<p>&gt; &quot;these laws and safeguards are regularly ignored and transgressed in all the jurisdictions ... about 900 people annually are administered lethal substances without having given explicit consent, and in one jurisdiction, almost 50% of cases of euthanasia are not reported ... some jurisdictions now extend the practice to newborns, children, and people with dementia. A terminal illness is no longer a prerequisite.&quot; [2]<p>Please, when you hear someone speak in flowery language about the dignity of choosing death, take a moment to evaluate what they are actually suggesting, and to research why people are opposed. Many seem to think that the only people against euthanasia are the religious whose reasoning is roughly &quot;well, my religion randomly chose to mark this as evil, therefore it is&quot;, which is just not the case.<p>[1] <a href="http:&#x2F;&#x2F;www.psychiatrictimes.com&#x2F;articles&#x2F;relationship-suicide-risk-family-history-suicide-and-psychiatric-disorders" rel="nofollow">http:&#x2F;&#x2F;www.psychiatrictimes.com&#x2F;articles&#x2F;relationship-suicid...</a><p>[2] <a href="http:&#x2F;&#x2F;www.ncbi.nlm.nih.gov&#x2F;pmc&#x2F;articles&#x2F;PMC3070710&#x2F;" rel="nofollow">http:&#x2F;&#x2F;www.ncbi.nlm.nih.gov&#x2F;pmc&#x2F;articles&#x2F;PMC3070710&#x2F;</a><p>(...finally, this is likely a very poor protocol for dealing with death - people deal in different ways, and not all people will look back fondly on having to smile all the time, or on expressing &quot;false&quot; hope and being told that, actually, objectively speaking, they should not have hope. Also, a totally minor point, but we are not like Lego houses - we do not need to be utterly destroyed for others to live.)
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flashmanabout 9 years ago
&gt; Imagine you have a box of Lego, and you build a house, and you keep it. And you keep making new houses, and never breaking the old ones. What happens? &quot;The box gets empty, Daddy.&quot; Good, yes. And can you make new houses then? &quot;No, not really.&quot; So we&#x27;re like a Lego houses, and when we die our pieces get broken up and put back in the box. We die, and new babies can be born. It is the wheel of life.<p>I am stealing this.
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sillysaurus3about 9 years ago
I didn&#x27;t know Pieter before today. He&#x27;s one of the coolest people I&#x27;ve had the good fortune of coming across:<p>&gt; My first free software is from 1991. I realized the power of community gradually from 2005 when fighting software patents in Europe. I refined and tested the techniques in the ffii for projects like digistan. I saw the failure of money and power in amqp. In zeromq it took years to find the right patterns. I documented much in culture and empire.<p>This earned my respect beyond words:<p>&gt; &quot;There&#x27;s this experimental cure people are talking about.&quot; This gets the ban hammer from me, and happily I only got a few of those. Even if there was a miracle cure, the cost and stress (to others) of seeking it is such a selfish and disproportionate act. With, as we know, lottery-style chances of success. We live, we die.<p>And this is just awesome: <a href="https:&#x2F;&#x2F;news.ycombinator.com&#x2F;item?id=11521249" rel="nofollow">https:&#x2F;&#x2F;news.ycombinator.com&#x2F;item?id=11521249</a><p><i>&quot;I&#x27;m sorry to hear this, Pieter. I don&#x27;t have a question, but would just like to wish you well&quot;</i><p>&gt; Excellent question! (can you tell I&#x27;m bored in a hospital)? Well, it all started when I was about three, and I discovered ants. Fire ants, to be specific. Biting me all over cause I&#x27;d chosen to hide right on top of their nest. There&#x27;s a lesson there.<p>Thanks, Pieter. For everything!<p>--<p>If you&#x27;d like to thank Pieter more directly, he&#x27;s accepting Paypal donations at ph@imatix.com.<p>&gt; Well this is really kind. Yes, I&#x27;m pretty broke and have three young children who will be semi orphans. Cue violins. Happy to receive on PayPal at ph@imatix.com. I will give my family the keys to that so they can put it aside for ma wee bairns... Thanks for suggesting this.
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marincountyabout 9 years ago
This is the most altruistic, caring piece of communicating I have ever read.<p>I don&#x27;t know this man, but I love him. I will remember this to my own demise.<p>I will look for a political group that is for a humane way of dying, and ask what needs to be done.<p>My father died in extreme pain. For three days he was in hell. His last words he spoke to me, &quot;when will it end?&quot;. I didn&#x27;t have an answer. My father&#x27;s death kinda ruined my life. Even though we had our differences; every day since that day in January, 11 years ago, I think about how he suffered, and part of me died with him.
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nikolayabout 9 years ago
As an Eastern Orthodox Christian, euthanasia would not be an option to me, but I really hope I&#x27;d never have to think about it as a choice. I had an early stage melanoma in 2004 and I know I &quot;beat it&quot;, but I also know it&#x27;s all a matter of time and I made some important lifestyle changes and most importantly - switching to a ketogenic diet and intermittent fasting. (Well, also as an Eastern Orthodox Christian, I&#x27;m currently undergoing Great Lent, and I know for a fact that carbs are terrible in the long run.)<p>It&#x27;s so pathetic that we as a society waste so much time and energy on non-essential stuff instead of curing major killers. Yes, cancer is a hard one to beat (each cancer being different, too), but we&#x27;ve done even more complex things as humanity. I really don&#x27;t think curing major diseases has ever been a top priority of our society! I hope one day soon people finally realize that diseases are not what other people get (the arrogance of the healthy), but what we all will eventually!
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skylan_qabout 9 years ago
Some other reading on the topic for those who are interested: <a href="https:&#x2F;&#x2F;en.wikipedia.org&#x2F;wiki&#x2F;Ars_moriendi" rel="nofollow">https:&#x2F;&#x2F;en.wikipedia.org&#x2F;wiki&#x2F;Ars_moriendi</a> &quot;The Art of Dying&quot;
angersockabout 9 years ago
Pieter, I hope that when the time comes I have the poise and grace to deal with things to as high a standard as you have here.<p>Thank you.
simplemathabout 9 years ago
I hope to muster the level of clarity and pragmatism you show here if I have time to reflect upon it when my number is called.<p>Inspiring.
knownabout 9 years ago
You can write an exclusive book and pass it on to your children
anonymous777about 9 years ago
This whole thread reeks of death acceptance culture. HN readers show off how cool they are for accepting death instead of discussing how we as a tech community could help cure these diseases or at least give more people an option of being cryopreserved.<p>The really unpleasant truth is that if we as a society began doing serious focused R&amp;D on these life-threatening diseases earlier, the OP and many others wouldn&#x27;t have to die.<p>But we didn&#x27;t. Enjoy marketing your mobile apps until cancer suddenly makes you rot away.
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samioabout 9 years ago
Edit: the date has been fixed in the artice. Also: I&#x27;m sorry.<p>So, what&#x27;s up with the dates?<p>First, the article date:<p>&gt; wrote on 22 Apr, 05:43 (4 hours ago)<p>Then later in the text:<p>&gt; and on 25 April my oncologist confirmed it was cancer.<p>Seems like someone is a secret time traveler...?
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drivebyopsabout 9 years ago
Thought this was something for killing processes judging by the title and it being hacker news