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I’m 35 and I may suddenly have lost the rest of my life

354 pointsby fhrow4484almost 8 years ago

35 comments

rcarrigan87almost 8 years ago
My brother was diagnosed with a rare form of sarcoma (cancer) at age 35. Basically was given about a 10% to live. 180 servings of chemo&#x2F;radiation later we started lining up hospice and he prepared to say goodbye to his 2 young kids and wife.<p>Last ditch effort was an experimental drug. Out of 150 people in the trial, he&#x27;s the only one alive 12 years later. 6 years ago he started a company that is about to hit 8 figures in revenue and over 300 employees.<p>Life can definitely have a lot of swings.
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lgessleralmost 8 years ago
With much sensitivity to the physical and emotional turmoil the author must be experiencing right now, I disagree with his advice:<p>&gt; Stop just assuming you have a full lifetime to do whatever it is you dream of doing.<p>Rare and catastrophic events like this that can severely shorten your life are ones you should not plan for. If they occur, that&#x27;s very unfortunate, and maybe you&#x27;ll still have a contingency plan that can rearrange your plans to fit the remainder of your life, but he was still right to have arranged his life from the start to maximize his expected (in the statistical sense) impact:<p>&gt; Before this diagnosis I’d been thinking of my 1st 35 years — aside from being a ton of fun and travel — as preparation. I felt like I was building a platform (savings, networks, skills, experience) that I could then use in my second act to make a real contribution, to “make my mark”<p>&quot;Most of the time&quot;, he would have been right to use the early part of his life to make long-term investments in his development. It&#x27;s just that this time it turned out to be the wrong choice.
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Mzalmost 8 years ago
PSA for anyone reading this: Colorectal cancer for younger people seems to be on the rise. They don&#x27;t seem to know why.<p>My father had colon cancer and was not expected to survive it. I think he was 69 when he was finally diagnosed. He had put off seeing a doctor because he thought it was &quot;just old age&quot; and it was quite advanced by the time he was diagnosed. He did survive it and died, iirc, just short of his 89th or 90th birthday.<p>A lot of my relatives have had cancer, some of them more than once. Few of them have died from it. So, I tend to be biased in assuming that it can be conquered, even when the doctors say the odds are long against.<p>I know I have seen quotes on HN about how the odds are long against startups and other things, but how you can work to overcome those odds. I think it is a bit like that.<p>Good luck in your journey. Best wishes on your outcome.
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maxericksonalmost 8 years ago
Any amount of unexplained rectal bleeding is reason enough to schedule an appointment with a doctor.<p>The doctor is likely to recommend a colonoscopy. Removal of polyps (a likely source of bleeding) reduces the chances of cancer developing and can only be done during a colonoscopy.
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neilwilsonalmost 8 years ago
Remember that the anecdotes on here serve two purposes.<p>(i) to show that the aggregate does not inform the individual. As a species we are too influenced by aggregate stats. There is huge variation in individual responses.<p>(ii) history is written by the winners. Those people who did not survive cancer are not here to write about it and those surrounding them tend to want to forget and move on. Survivor bias is a real thing.<p>Not only is this story a reminder that life is short, but also that we must battle each day to keep perspective when the world and our human limitations are always trying to skew our views.<p>Given the tensions in the world, seeing things from the other points of view has never been more important.
lohankinalmost 8 years ago
Had same thing at age 44. Stage 2.5, was given 60% chance. Had chemo and radiation. There&#x27;s something I can share with you if you write to tatumizer at gmail dot com. I really hope I can help. I&#x27;m 60 now, still working as a programmer.
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Viper007Bondalmost 8 years ago
Last fall at the age of 32, I was diagnosed with leukemia (ALL). I went from a completely normal life to being in the ER in just a week (thought I just had the flu in between). My life has been completely on hold for the past 10 months while I deal with this and the resulting bone marrow transplant.<p>Thankfully ALL has a very high success rate for treatment and long term survival, but it has certainly made me realize how unpredictable life can be. I was putting things off that I wanted to do with my life and once I finish recovering, I certainly will work to correct that.<p>Don&#x27;t wait until tomorrow.
spraakalmost 8 years ago
It&#x27;s never too late to turn to the Dharma. I lost a child recently and the only hope I can find out of it has been to study what the Buddha taught.<p>&gt; if we start thinking about impermanence now, while we still have time to find skillful means to deal with it, then later we will not be caught unaware. Even though in the short term the contemplation of death and impermanence might cause discomfort, in the long term it will actually save us from greater suffering. [1]<p>1. <a href="http:&#x2F;&#x2F;rinpoche.com&#x2F;teachings&#x2F;sevenpoints.htm" rel="nofollow">http:&#x2F;&#x2F;rinpoche.com&#x2F;teachings&#x2F;sevenpoints.htm</a>
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_rockit_almost 8 years ago
It took a case of endocarditis, a 30% chance of survival, two heart valves being replaced, a pacemaker installed, and another brush with death during the 6 month recovery, all at age 24, to wake me up. Ever since then, one thing I&#x27;ve really wanted, with all of my heart, is for people to wake up - see that this is not forever and tomorrow is not guaranteed. Listen to me, listen to the author - please, do what you need to do to enable yourself to pursue the dreams you really have, stop &quot;just getting by&quot;.
asldfkweiorzalmost 8 years ago
Good luck with that.<p>Shit happens; my wife was stabbed on the way back home at 29 and has been in a coma and now vegetative state since. If someone has a good way to deal with this crap, please do let me know.
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LordHumungousalmost 8 years ago
Visited a GP about a year ago due to blood in my stool, and he said it was hemorrhoids, but it hasn&#x27;t gone away since. Going to schedule another appointment this week thanks to this article.
aiyodevalmost 8 years ago
Every time I read a story like this it makes me angry that $700 million were wasted on Theranos instead of being invested in cancer research. Why isn&#x27;t Elizabeth Holmes in prison yet?
luckydudealmost 8 years ago
Do your research. I&#x27;m not an expert, not even close, but a buddy of mine pushed his wife&#x27;s curve way, way out. Maybe you can too.<p>She has stage 4 lung cancer, it&#x27;s spread to her brain. If she gone to Stanford, like she wanted, they would have done whole brain radiation to try and blast the brain tumors. The problem with brain tumors is that there is that barrier that keeps bad stuff out of the brain and it only lets small stuff through, chemo tends to be large.<p>My buddy started researching and asking questions (he&#x27;s business&#x2F;sales but I think he&#x27;s an engineer). The 5 year survival rate is less than 1% for stage 4 lung cancer. So he started asking doctors and hospitals &quot;what&#x27;s your 5 year survival rate&quot;. Everyone pointed him to national stats and he said &quot;no, I know those numbers, what are yours?&quot;. El Camino Hospital publishes their numbers because they are much, much better: 15%. I know, 15% isn&#x27;t great but it is a boat load better than under 1%.<p>So they went there. El Camino has a different approach to this sort of situation, they use some chemo (avastin maybe?) that is small celled and gets through the brain barrier. They also did pin point radiation.<p>The results: it&#x27;s 2 years out, I think 2 years and 1 month, and my buddy&#x27;s wife isn&#x27;t fine but she&#x27;s damn close. She&#x27;s on an every 3 week chemo cycle, she typically gets 11 good days and 10 crappy-bad days. They both retired (I still pay his health insurance which is a big deal) and bought a travel trailer, do 2-5 days trips up and down California. They are fully aware that they are trying to cram all of their retirement into a few years and so far are doing a great job, their doctor loves it (apparently a lot of cancer patients sit on their butt, just waiting for the next chemo session).<p>If she had gone to Stanford, while the radiation would have likely wiped out the tumors, it also has this little side effect called dementia, happens very quickly. So this outcome is much, much better and it only happened because my buddy did his homework.<p>And one sort of cool thing happened: this all started before my company imploded and I gathered the team and said &quot;I want to send Bob on vacation. We&#x27;ve only got so much runway left so if you don&#x27;t want to use some of that money on Bob, I get it, I won&#x27;t judge, I&#x27;ll pay for the vacation myself.&quot; It was unanimous, they wanted the vacation to be from the team (I was so proud of them, that&#x27;s the team I wanted). So we sent them back east to see the fall colors, they had a great time.<p>It&#x27;s worth stating that I&#x27;ve watched my mother-in-law and my father die of cancer (and while my love for my dad is pretty obvious, I loved my mother-in-law as well, we got along great). The thing that I&#x27;ve learned is the second you know you have something that is life threatening do whatever you want to do RIGHT NOW. I pushed for the vacation thing for Bob because my mother-in-law didn&#x27;t want to have friends over &quot;until she was better&quot;. I deeply regret not just arranging to have all her friends come in. She died pretty quickly.<p>So I don&#x27;t want to be morbid, or show any lack of hope, but there is the possibility that OP is in the best shape he&#x27;s gonna be. So use that time to have some fun, build some memories, whatever you think is good. If you kick cancer&#x27;s ass you&#x27;ll have some memories to look back on, if you don&#x27;t, your family will have some to hold onto. Do not listen to the doctors, they tend to be overly hopeful and give you a false sense of hope (I get it, it&#x27;s kind of all they can do, but we would have liked a more realistic view. They let my mother-in-law think she was going back to work).<p>Good luck, cancer sucks.<p>Edit: explain that lots of patients don&#x27;t live between chemo sessions and a typo.
tarr11almost 8 years ago
Colonoscopy was a pretty fast and painless experience for me. The prep drink I had to take the day before was the worst part.<p>Being worried is definitely not a reason to put it off!
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open_bearalmost 8 years ago
See significant change in &#x27;going to toilet&#x27; procedure or blood in stool? Go to the doctor! <a href="https:&#x2F;&#x2F;www.youtube.com&#x2F;watch?v=tQIHJmvnzwg" rel="nofollow">https:&#x2F;&#x2F;www.youtube.com&#x2F;watch?v=tQIHJmvnzwg</a>
rockitalmost 8 years ago
It took a case of endocarditis, a 30% chance of survival, two heart valves being replaced, a pacemaker installed, and another brush with death during the 6 month recovery, all at age 24, to wake me up. Ever since then, one thing I&#x27;ve really wanted, with all of my heart, is for people to wake up - see that this is not forever and tomorrow is not guaranteed. Listen to me, listen to the author - please, do what you need to do to enable yourself to pursue the dreams you really have, stop &quot;just getting by&quot;.
Raed667almost 8 years ago
I&#x27;m sorry about this, really hope you will get through it.<p>But this gets me thinking about a couple of bleedings I had a few months ago and totally dismissed. I will definitively see a doctor soon.
sp821543almost 8 years ago
Scott, I&#x27;m sorry about this.<p>Why isn&#x27;t the medical community looking for early warnings? relatively cheap tests for hs-crp, IL-6, TNF-alpha could be helpful. Inflammation is the precursor to disease.<p>Do yourselves a favor &amp; ask your doctor for the hs-crp test to measure inflammation.
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ciceroalmost 8 years ago
I&#x27;m praying for you, Scott.
zocoialmost 8 years ago
Just out of curiosity, what can an average Joe do to protect his legacy and ensure good outcome for his family? Cancer insurance, any other options?
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dvtalmost 8 years ago
My grandmother had breast cancer about a decade ago and it was grueling for the whole family. She went into remission after aggressive chemo, but I pray every day no one else in my family will be afflicted with this terrible disease and that the hard working scientists and researchers out there will soon find a cure.<p>This puts my own trivial problems into perspective. I hope you make it. God bless.
ringaroundthetxalmost 8 years ago
&gt; Don&#x27;t assume you have a lifetime to pursue your dreams.<p>But will this change our perception of people in their 20s-30s that do pursue their dreams and are behind in their careers and finances?<p>At what point is a quarter&#x2F;mid-life crisis not just an acceptable adult YOLO?<p>The author has some initial regrets on building up their savings and network, and I wonder if additional perspectives will be made by me posting this
superobserveralmost 8 years ago
Stop eating anything grown in the US or under the domain of corporate farming, anything grown with chemical (Monsanto&#x2F;Bayer) pesticides, and look for as much communally, organic grown food as you can. Why has IBS exploded in recent decades? Miracle grow for cancer is literally being added to the food supply.
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RickJWagalmost 8 years ago
So sorry to read that. Good luck to the author. I&#x27;d love to read a happy follow-up in 10 years.
pcuniteover 7 years ago
Make yourself ready, before you die.<p><a href="http:&#x2F;&#x2F;youarehere.place" rel="nofollow">http:&#x2F;&#x2F;youarehere.place</a>
lhuser123almost 8 years ago
Life is a strange thing. One day you can have everything and the next nothing. Then, answers are never enough. And you&#x27;re left with the option to do the best with what you still have.
jacquesmalmost 8 years ago
That&#x27;s so terribly sad.<p>That highlit bit should be tattooed on everybody&#x27;s forehead at birth so you see it every day. Lots of wisdom in there.
zoom6628almost 8 years ago
Best wishes. Be positive. Love your kids and family - the best legacy is what they keep in their hearts.
faragonalmost 8 years ago
Don&#x27;t surrender, Scott.
theklubalmost 8 years ago
I&#x27;m sorry, I hope you get through it.
sAbakumoffalmost 8 years ago
why did it bring so much attention? Some guy has been diagnosed with cancer, that happens every day.
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Balgairalmost 8 years ago
Allow me to be profane for a moment:<p>FUCK CANCER<p><a href="https:&#x2F;&#x2F;clinicaltrials.gov" rel="nofollow">https:&#x2F;&#x2F;clinicaltrials.gov</a><p>Start Here, please!
davidreissalmost 8 years ago
My uncle was diagnosed with cancer last july and died 3 months later. Left behind a wife and two kids. The holidays was rather depressing last year.<p>He was an athlete who ran in marathons. Never smoked or drank. But cancer still took him. Such a terrible disease.
imaginenorealmost 8 years ago
Lie, cheat, and steal if you have to. I&#x27;d bribe medical staff just to get the best experimental treatments if you can&#x27;t get there via legal means.
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andreasgonewildalmost 8 years ago
I&#x27;m sorry to hear that; if you let them in there with their gadgets; they will find a reason to cut, medicate and radiate; that&#x27;s unfortunately just the way things are. These are not the only options, not even the best options, for patients. Get a second opinion, and a third; preferably from outside of Big Pharma. You might have to make some tough lifestyle choices; like seriously cutting down on meat, alcohol, sugar and stress; but your body has an unlimited potential to heal itself when given the chance. Be well and don&#x27;t panic; remember, mind over matter; how you feel will affect the outcome more than anything they could come up with.
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