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Pebilepsy – Pebble app for seizure tracking and measurement

113 pointsby yatoomyover 10 years ago

8 comments

JshWrightover 10 years ago
Automatic notification would be a neat feature.<p>Have it text a family member when a seizure is detected so they can follow up with a phone call in a little bit to make sure everything is ok.<p>As more and more 911 centers accept SMS messages, it might be cool to allow the user to specify some threshold after which an automated text is sent to 911. The vast majority of epilepsy related seizures do not require an ambulance, but in the event of a seizure that does not stop in a &#x27;normal&#x27; time frame[1], it could get help coming that much faster.<p>[1] <a href="http://en.wikipedia.org/wiki/Status_epilepticus" rel="nofollow">http:&#x2F;&#x2F;en.wikipedia.org&#x2F;wiki&#x2F;Status_epilepticus</a>
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cmfosterover 10 years ago
This is a great idea. Unfortunately for me I have&#x2F;had petit-mal seizures, because of that I don&#x27;t think the method by which this tracks seizures would work for me.<p>I love the name, love the idea, keep it up!
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whyleycover 10 years ago
I&#x27;ve been looking for something like this for ages - I have a family member who suffers from generalized tonic clonic seizures and have been looking at ways to try and do remote tracking.<p>The #1 feature request I would have is the ability to nominate a mobile number to get an SMS alert if a seizure is detected.<p>Is there any chance of getting early access to this ? I&#x27;d be really happy to be an Alpha tester and would be highly motivated to give you guys as much feedback as possible from the p.o.v. of a family using it to monitor epilepsy.
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mcmanciniover 10 years ago
This is a great idea (and name!), but does this fall under FDA regulation? I haven&#x27;t kept up with the FDA&#x27;s current policy on medical apps.
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georgehaakeover 10 years ago
Silly to move forward with medication dosage and other management with just generalized tonic clonic seizures. Leaving out partial complex seizures and the like would be required information. Most temporal lobe seizure patients have a much greater partial to generalized seizure ratio.
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programover 10 years ago
Great device to be used during the sleep.<p>As an epileptic I doubt that this kind of device &quot;can help them (the epileptics) adjust their medications.&quot; My neurologist adjust my medications every 6 months after studying my blood analyses, standard EEG and sleep EEG.
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georgehaakeover 10 years ago
Also these seizures leave post ictal symptoms to make such seizures notable to the patient. Partial seizures not so much. Those complex partial and absence patients are the target group for benefit.
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dj0over 10 years ago
As someone who has seizures I find this to be really awesome but I the name seems a little odd.
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