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The simple process of re-identifying patients in public health records

87 点作者 peter_tonoli超过 7 年前

5 条评论

TeMPOraL超过 7 年前
A friendly reminder that there's no such thing as "anonymized data", there's only "anonymized until combined with other data sets".
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ilaksh超过 7 年前
A worse problem, I believe, is more on the side of people actually easily accessing their medical records. It seems that providers have used the onerous privacy laws as an excuse to obstruct the process of releasing medical records in order to prevent customers from moving to another provider.<p>For example, the Doctor On Demand app has records of all of my visits available on the screen when I am logged in, but in order to actually export or download them, I was required to call them, then fill out an online form where none of that data was prefilled, then I will need to wait up to 10 days for the request to be filled. Its ridiculous.<p>It doesn&#x27;t make any sense, since I could just take screenshots on the app as I scroll through the data. Which it seems that if I am identified on the app, they should be able to release the records -- which they do -- they just deliberately make it difficult to export them.<p>Someone is going to come on here and give me a lecture about privacy laws and how they have to do that or something, but I think its BS. The laws need to be updated to ensure that people can access and export and transfer their own medical records easily. I need to own that data.<p>I think there are quite a few groups working on technology to solve the problem of owning your data and also being able to share it in a non-identifiable way. Some of them use things like bitcoin or blockchain to do so. We definitely need high tech solutions so I hope some of these types of endeavors will become popular and more effective than some of the inept government efforts so far.
amichal超过 7 年前
&quot;anonymized&quot; is a statistical measure. What you are doing is making it less <i></i>likely<i></i> that someone can be identified not necessarily impossible. I think it would be best if folks were more honest about that. The article mentions finding 7 people in a dataset of 2.9 million. It&#x27;s obvious that they felt that 7 prominent people was enough to tell the story and they could likely find many more. My question is could they find 0.001%, 1%, 10%, or more? If so with what resources...<p>Edit: an old an interesting discussion on this: <a href="https:&#x2F;&#x2F;news.ycombinator.com&#x2F;item?id=2942967" rel="nofollow">https:&#x2F;&#x2F;news.ycombinator.com&#x2F;item?id=2942967</a>
cle超过 7 年前
&gt; but we now face the challenge of how to deliver that access, while protecting the privacy of the people in those datasets.<p>This is a losing battle. The information is already being leaked--we have been protected by the high cost and inaccessibility of analyzing it. These factors are quickly changing, and it&#x27;s time to ask ourselves: how do we intend to live in a post-privacy world?
crb002超过 7 年前
Black guy in remote Alaska village. Left leg and right hand amputated scenario. For anon you have to ditch geocoding; or aggregate symptoms across a population. IMHO anon should be good enough that the aggregated records become public domain.