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Simone Giertz on her brain tumour [video]

453 点作者 ap46大约 7 年前

18 条评论

AceJohnny2大约 7 年前
Wow, talk about curveballs. That&#x27;s a terrifying prospect, and I wish Simone the best for her surgery. I&#x27;m glad to hear it&#x27;s not malignant, and I hope that holds.<p>I&#x27;ve seen cancer show up unexpectedly among two friends. One discovered she had leukemia, and underwent chemo and a bone marrow transplant. She died from a lung infection because of her weakened immune system after the transplant, not even a year after the initial diagnosis. She had just turned 27.<p>Another friend discovered they had an extremely rare form of mesothelioma, the asbestos-caused lung cancer, except theirs isn&#x27;t due to asbestos and isn&#x27;t in the lung. There are less than 300 documented cases, rare enough that there are no experts, and they&#x27;re a case study. They&#x27;re currently living with the uncertainty in their mid-30s.<p>Both friends were in great physical health (the former made the regional swim team, the latter climbs the highest peaks in North America for fun) until the diagnostic.<p>Seeing this has reinforced my nihilism (there is no meaning to life but the one you apply to it), and gave me greater understanding that our multicellular bodies are a peace treaty among cells that is likely to break down at any moment.
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wanderfowl大约 7 年前
This makes me very sad, but I&#x27;ve also gotta highlight her skill at perfectly nailing the tone of that video. Humor, sadness, gratitude, and fear, in excellent measure.<p>Plus, I&#x27;m thrilled to see somebody else with a nice sense of gallows humor. Sometimes, we have to laugh so we don&#x27;t have to cry.
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protomyth大约 7 年前
Well that blows. I guess it is a reminder to watch for the little things on your head and how you feel. My cousin is going through the same &quot;not cancer&quot; but problematic brain tumor problems. He was further hampered by the learning he had a brain tumor from the billing department as opposed to his (now former) doctor. His only warning was a stiff neck for days on end.<p>Here&#x27;s hoping that her Paetreon <a href="https:&#x2F;&#x2F;www.patreon.com&#x2F;simonegiertz" rel="nofollow">https:&#x2F;&#x2F;www.patreon.com&#x2F;simonegiertz</a> holds her over. Maybe some folks will sponsor some projects.
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zitterbewegung大约 7 年前
:-( I really hope Simone Giertz pulls through on this. I really like her videos and she has been an inspiration for me to make shitty arduino projects.
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coupdejarnac大约 7 年前
It&#x27;s good that her tumor isn&#x27;t cancerous, but she&#x27;s going to be out of action for at least a year. I see other people saying that she can make a full recovery, but this is not the type of thing you ever fully recover from. Two of my girlfriends had brain tumors, both in their 20s. It&#x27;s life changing, if not life shattering.
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Judgmentality大约 7 年前
I&#x27;m a big fan of Simone, and I&#x27;m a big fan or her morbid sense of humor. #tumorhumor<p>Obviously I can&#x27;t predict the future, but it seems like she&#x27;s going to be okay.
agumonkey大约 7 年前
It sucks but if it&#x27;s not malignant it&#x27;s a huge relief (even if it&#x27;s a hugely bad news).
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jacquesm大约 7 年前
Gah that sucks. She&#x27;s pretty brave for putting this out there. And incredible how she&#x27;s able to have a sense of humor in this situation, I&#x27;m pretty sure I&#x27;d be mean as hell for a while.
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GW150914大约 7 年前
Oh damn, she’s an inspiring person, and I hope that this goes as well as possible for her. No matter how tough and funny you are, a curveball like this is always going to be a terrible shock, but the strength and humor will definitely help with recovery. I’m confident that her many fans (myself included) will wish her well and be waiting for her return when she’s ready,
sus_007大约 7 年前
I can only imagine how she must be feeling right now. But, tumors are such nasty conditions, almost unpredictable consequences. I hope her operation goes well.
nodesocket大约 7 年前
Oh wow. Feel super bad for her and wish her the best of luck and speedy recovery.<p>At the same time this absolutely terrifies me and shows how fragile life is. Thankfully Simone is in Sweden so she does not have to worry about the financial impact (she has enough to worry about). I am self employed here in the US and pay for my insurance plan 100% out of pocket (don&#x27;t qualify for any subsidies). The plan is frankly god-awful with something like an annual max out of pocket of $10,000 and $7,000 deductible. A cancer diagnosis would financially ruin me even though I pay nearly $400 a month in health insurance premiums. If I was diagnosed with cancer, the last thing I should have to worry about is how I am going to pay for it (especially seeing as I pay more than my fair share). The reality is I have way more of financial burden even though I am paying full price than somebody who get&#x27;s their plan subsidized from Obama Care. They pay significantly less (sometimes nothing), yet have better care than me.<p>I can truthful say, I would fear the financial impact more than the cancer which is a scary reality.
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staunch大约 7 年前
I hope people and technology can fix her completely and this ends up just being a bump in the road of her life. She&#x27;s already made the world better (yet again) by sharing this experience. We all need to be reminded of how precious life is and how important it is to improve medical technology.<p>Good luck Simone!
dvcrn大约 7 年前
Currently people in my life left and right get diagnosed with cancer and it’s awful.<p>I wonder what one can do to make sure to not run into the same surprise. I am guessing because of the many kinds of cancer that you can’t just do a “cancer checkup” twice a year?
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Waterluvian大约 7 年前
I&#x27;m still jealous of Simone&#x27;s natural voice and cadence lending itself to her style of humour. You know, just one of those people that just by the way they talk, funny stuff is amplified.
martin1975大约 7 年前
Thank God it&#x27;s not a glioblastoma. Had an acquaintance die from it after years of resections and chemo. She&#x27;ll pull through.
petecooper大约 7 年前
Sad news. I&#x27;m glad I waited &#x27;til the end of work before I watched this and turned into a crying mess.
therein大约 7 年前
Wow, it is crazy how unpredictable life is. I hope she will be okay.
berg01大约 7 年前
Hesitated whether to share this or not, in case Simone would read it...<p>My (then 70yo) mom got diagnosed with something very similar three years ago (golfball-sized tumor just behind one of the eyeballs). It was super scary for everyone involved.<p>The surgeon (in Linköping, Sweden) was one of the top specialists globally on this type of procedure - I did a ton of research before the surgery.<p>Recovery took a few days. They were wonderful at the hospital.<p>She&#x27;s fine now, but her eye-sight on the affected eye is like 30%. I think the reason for this is that it was diagnosed quite late.<p>I&#x27;m quite surprised that such a young person like Simone (she&#x27;s 27 according to wikipedia) has a golf-ball sized tumor.