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How Much a Dementia Patient Needs to Know

115 点作者 anuragsoni超过 6 年前

10 条评论

mirimir超过 6 年前
Damn. I can barely read TFA. I mean, we&#x27;ll all eventually face some sort of dementia. And death, of course. But when you&#x27;re 70, it&#x27;s much more immediate.<p>There were times in my life when I didn&#x27;t do much except drift, play with drugs, seek sex, put my life at risk, etc, etc. All the serious stuff could wait. And WTF, there&#x27;d be global nuclear war any day now. So why bother?<p>Now I&#x27;m retired. There&#x27;s no need to work, so all I do is putter. And my likely future is so short that there&#x27;s no point in long-term planning. Also, and it&#x27;s quite amusing, I don&#x27;t need drugs to space out. I need them to stay focused. And to keep various physiological stuff from killing me.<p>So maybe I&#x27;m a lot like that patient in TFA. But there&#x27;s a key difference: I&#x27;ve never been diagnosed and institutionalized. And dog willing, I&#x27;ll die before I am.
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jquinby超过 6 年前
Related: entire self-contained &#x27;villages&#x27; for dementia patients: <a href="https:&#x2F;&#x2F;gizmodo.com&#x2F;inside-an-amazing-village-designed-just-for-people-with-1526062373" rel="nofollow">https:&#x2F;&#x2F;gizmodo.com&#x2F;inside-an-amazing-village-designed-just-...</a>
cmiles74超过 6 年前
Is it surprising that people are happier and better able to deal with their illness when they believe they are doing meaningful work and are useful to the people that surround them?
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WalterBright超过 6 年前
Dementia patients will forget that many of their loved ones are dead, and will ask to visit them, or why they don&#x27;t come to visit. Reminding them that they&#x27;re dead is a terrible thing, as I found out the hard way. Just say they&#x27;re out of town for the time being. They&#x27;ve lost their ability to cope with reality, it&#x27;s best to just go with the flow instead of upsetting them.
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Deimorz超过 6 年前
This is another good (and very long) article from The New Yorker on the topic, from last October: <a href="https:&#x2F;&#x2F;www.newyorker.com&#x2F;magazine&#x2F;2018&#x2F;10&#x2F;08&#x2F;the-comforting-fictions-of-dementia-care" rel="nofollow">https:&#x2F;&#x2F;www.newyorker.com&#x2F;magazine&#x2F;2018&#x2F;10&#x2F;08&#x2F;the-comforting...</a>
simonsays2超过 6 年前
Do not be too quick to believe diagnosis of dementia. Doctors will diagnose it while patients are on medication like opiods. Then incompetence can be declared and the looting begun.<p>There is evil afoot you would not believe.<p>Dont argue. I am merely informing you, not convincing you.
brianberns超过 6 年前
Read all the way to the end thinking that it was remarkably well written, like an Oliver Sacks essay. And then I read the byline... Sacks was a treasure. What a gifted man.
black-tea超过 6 年前
It worries me to think that people would lie to me about my condition and I might not actually understand what&#x27;s going on. I would like to die before this stage, but if somehow I reached this stage first they&#x27;d keep me alive and I&#x27;d no longer be able to kill myself.
sigi45超过 6 年前
Sometimes he calls out, “I want to die. . . . Let me die.”<p>I personally will try to end it.<p>The stigma and no real options makes it more difficult than it needs to be.<p>Having control over your life should not stop when it is about your dead.
jeffrallen超过 6 年前
Humans are complex, and being humane is too. But it&#x27;s worth a try!