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Daughter from California Syndrome

36 点作者 sygma大约 4 年前

9 条评论

mkl大约 4 年前
This came up in the &quot;How Doctors Die&quot; discussion the other day: <a href="https:&#x2F;&#x2F;news.ycombinator.com&#x2F;item?id=26685244" rel="nofollow">https:&#x2F;&#x2F;news.ycombinator.com&#x2F;item?id=26685244</a>
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thaumaturgy大约 4 年前
This reads a bit like the medical profession&#x27;s inability to acknowledge its own fallibility.<p>I don&#x27;t know if I would have qualified as a &quot;daughter from California&quot;, but I have intervened in the care of a couple of family members, and in one case in particular it was for a pretty flagrant cock-up.<p>I&#x27;m busy with my own life. I haven&#x27;t always been able to visit relatives as often as I&#x27;d like. I try to ask questions about their health when the topic comes up, but I also have to trust them and their caregivers to be competent.<p>But when there&#x27;s a serious life event, I&#x27;ll show up, and bring curiosity with me, and sometimes that uncovers mistakes made by people who are simply less invested in the well-being of my relative.<p>In my grandfather&#x27;s case, some long-term health issues got him admitted into a home hospice program. Overall, it was a great program. But, he was in it for well over three years. Home hospice is structured to last for around six months. There&#x27;s a common drug cocktail of benzodiazepines and opioids that gets administered in increasing dosages to bed-ridden hospice patients, to help &quot;ease them along&quot;. It&#x27;s not common knowledge that this happens and it can be done without the family&#x27;s knowledge or consent. In cases involving pain or anxiety or end-of-life care, it&#x27;s a kindness.<p>But the medical literature specifically advises against it in elderly patients that are still mobile, because it significantly lowers their blood pressure and when they stand up it can cause them to pass out.<p>That&#x27;s what happened to my grandfather. He got banged up pretty good and admitted back into the hospital, which is a bad place to spend much time when you&#x27;re elderly. He was hallucinating when I saw him and his mobility was far worse than it had been when I saw him several months prior.<p>So, I started asking questions, got caught up to what was going on, started pressing the matter, and finally got to pitch his case to a visiting internist, who reviewed it and then agreed that somebody had put him on the wrong program at some point and the rest was just a combination of game-of-telephone and just-following-orders.<p>Dosages were gradually decreased, he regained full consciousness, got some PT, got out of the hospital, and had another couple of years of grandchildren and great-grandchildren and friends and so on.<p>&quot;Daughter from California Syndrome&quot; may just as well be a term for the systemic errors that many people in medicine would prefer not to acknowledge.
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asimjalis大约 4 年前
I liked the last line: ‘In California, the &quot;daughter from California&quot; is known as the &quot;daughter from New York&quot;.’
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DoreenMichele大约 4 年前
This amounts to torturing someone for your own comfort instead of doing what&#x27;s in their best interest.<p>I have heard it described as &quot;prolonging their <i>death</i>, not their life.&quot;
EvanAnderson大约 4 年前
Given that this is a forum with strong international participation I&#x27;d be interested to hear what non-Americans think about this. As an American, I believe that our culture has a very unhealthy attitude toward dying (often thinking about it as &quot;if&quot; instead of &quot;when&quot;). I think that attitude drives a lot of bad decisions surrounding end-of-life care (both for ourselves, and for loved ones).<p>I know that attitude about euthanasia differ pretty markedly in other countries. How about the attitudes re: death and dying? Are the &quot;attitude problems&quot; I observe an American anomaly?
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notacoward大约 4 年前
This exists in programming too. People joining a project often start pushing for it to include every great idea they heard about at their last job (or the one they bounced to&#x2F;from). Psychologically I think it&#x27;s the same thing. Call it &quot;Developer from Google Syndrome&quot; I guess.
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ggm大约 4 年前
Get an advanced health directive worked out well before you need one.
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CyberRabbi大约 4 年前
I can certainly empathize with the daughter from California. Life moves very fast and the lucky few notice before it’s too late.
barnaclejive大约 4 年前
&gt; See also<p>&gt; Dunning–Kruger effect<p>&gt; Karen (pejorative)