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Settling in for the long haul

65 点作者 MaysonL将近 3 年前

8 条评论

pigtailgirl将近 3 年前
-- long hauler here - I used to be the smartest person people knew - everyone would always say "wow.. you're so smart" - my memory was extremely good - I could remember most conversations I'd had - how I'd learned the things I knew came with ease - I'd be the one people would always pull into conversations to help problem solve - now - I don't know how to describe it - I know the stuff is still in there - but it's like the map to the knowledge has faded - now I spend a lot of time remembering how to remember - it's been particularly difficult as - for better or worse - I really defined myself as the smart person in the room - I really wish I could get back to how I used to be - I've tried everything I can think of but so far nothing has really helped - to be honest when I first realized what was going on I became suicidal - now I've learned to accept it - however I still hide myself away from everyone --
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fny将近 3 年前
How is everyone so sure 12 month+ symptoms are due to COVID-19? Yes, I accept 3-4 month coughs and brain fog can be attributed (many papers on this, it is also well documented with the flu). Yes, I accept chronic issues evolving from pre-existing conditions and severe illness. However, we had 100M people in the US alone be infected with a virus in a two year span. Many people develop chronic fatigue, mental illness, and hosts of othe syndromes in normal times often without clear cause. These symptoms are at times written off as &quot;made up&quot; as well.<p>It&#x27;s extremely human to attribute the origin of inexplicable disease to a foreign agent like COVID just as much as people often search for the origins of their suffering in food, relationships, and other facets of life, but these are often not causal.<p>To complicate matters further, COVID presented tremendous stressors beyond the illness itself: fear of COVID, lockdowns, social isolation, disruption in work&#x2F;schooling, social pressures around reopening and beliefs, inflation. People died. Routines were disrupted. Lives were upended. The environment these past two years were a breeding ground for affective disorders.<p>I only bring this up because a decade ago my mother began to suffer from fatigue and aches that to this day are a complete mystery. She was diagnosed with fibromyalgia which affects 2-4% of the population. Had this happened during COVID, she would have sworn on her life her symptoms were due to COVID. Even I would have agreed.<p>Again, the scale and immediacy of COVID is wild. The <i>entire world</i> got sick <i>at the same time.</i> That&#x27;s <i>at least</i> 600M people globally, 100M of those in the US. This means 1 in 100K and 1 in 1M events <i>will</i> happen. Now blend that with the natural incidence of every neurological and mental disorder... yikes.
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ok_dad将近 3 年前
Everything takes me way longer now due to a combination of brain fog, tiredness, and depression reducing my effective working time to about 2 hours a day. Unfortunately, US American society is already treating this like agent orange or gulf war syndrome: they think it’s fake or won’t admit it’s real so that millions will have to get by on our bootstraps. Lucky for me I can grind out some code everyday that’s minimally viable do I don’t get fired, but my small company isn’t doing so well, so hopefully I recover in time to job search.
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thenerdhead将近 3 年前
I also have an experience with long hauling. I recovered over 14 months. But can’t be sure it’s a full one.<p><a href="https:&#x2F;&#x2F;jondouglas.dev&#x2F;long-covid&#x2F;" rel="nofollow">https:&#x2F;&#x2F;jondouglas.dev&#x2F;long-covid&#x2F;</a>
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ck2将近 3 年前
The easiest way to explain to outsiders CFS-ME and the versions of long-covid that present with years of chronic fatigue is that you are now instantly 80 years old overnight.<p>You can still barely function, it&#x27;s just that everything is 100 times harder and slower. The part you can still function is what confuses people who have never been seriously ill and never even experienced post-viral fatigue for a few weeks.<p>And the age reference is apparently right in other ways, many diseases seem to leave long-term if not permanent DNA methylation problems which is exactly like &quot;old age&quot;<p><a href="https:&#x2F;&#x2F;clinicalepigeneticsjournal.biomedcentral.com&#x2F;articles&#x2F;10.1186&#x2F;s13148-022-01313-8" rel="nofollow">https:&#x2F;&#x2F;clinicalepigeneticsjournal.biomedcentral.com&#x2F;article...</a><p>There&#x27;s no cure for this because it would be like curing aging.
cjbgkagh将近 3 年前
I have hEDS which for me comes with ME&#x2F;CFS which a very similar condition to Long Covid. It is something I’ve had to deal with my whole life. Despite what doctors may say there are meds that help a lot. Low Dose Naltrexone (LDN) being the most likely to help brain fog, then meds for dysautonomia beta blockers etc. And other neurotransmitter meds to get going again. Doesn’t work for everyone but does work for many. hEDS affects a decent percentage of the population, can get quite debilitating, has been known about medically since Hippocrates, and yet according to doctors still doesn’t have a treatment. So I would advise against waiting for doctors to figure this out.
drewcoo将近 3 年前
Is a rambling lack of clarity a ME&#x2F;CFS symptom?<p>Because a decent (human) editor could clear that up.
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helloworld11将近 3 年前
Anecdote, sure but I&#x27;ve had COVID 3 times so far across at least two strains (Delta, Omicron and maybe a newer mutation of Omicron) and no, no long term symptoms that I can identify. Likewise for at LEAST a couple dozen friends and acquaintances of mine. I&#x27;m sure that long COVID does exist, but I hesitate to give so many claims credence when they could easily also be the result of ambiguous things like general hypochondria, misatribution and sickness fetishism, all three of which absolutely exist too.
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