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Show HN: I've created a site about Bone Marrow Donation

120 点作者 danielna超过 13 年前
Hi HN,<p>I've posted a couple times here before (mostly within posts pertaining to Amit Gupta's search for a bone marrow donor) and I wanted to share a site I've been working on for the past 5 months or so that recently went live. I'm going on my fifth year of being an Acute Myelogenous Leukemia survivor, and while I didn't need a bone marrow transplant myself at one point it was a very real possibility. At that time I became aware of the lack of minority bone marrow donors and made a promise to myself to try to do something about it if I were to survive. This site is something of a fulfillment of that promise.<p>I don't know if this is explicitly HN-worthy, given that it's not a programmatically-impressive web app or a strictly technical exercise. But given the publicity that Amit's search for a donor has created for the cause, and some previous posts highlighting concerns around bone marrow donation, I felt like this submission may be relevant to the community. In the end, hacking is very much about finding a problem and solving it using technology. I was dissatisfied with the websites I found and the explanations I was given, so this is my attempt to solve that problem.<p>If this post gets any notice the website may very likely go down given my shared hosting plan. I apologize in advance for that.

15 条评论

danielna超过 13 年前
Hi HN,<p>I've posted a couple times here before (mostly within posts pertaining to Amit Gupta's search for a bone marrow donor) and I wanted to share a site I've been working on for the past 5 months or so that recently went live. I'm going on my fifth year of being an Acute Myelogenous Leukemia survivor, and while I didn't need a bone marrow transplant myself, at one point it was a very real possibility. At that time I became aware of the lack of minority bone marrow donors and made a promise to myself to try to do something about it if I were to survive. This site is something of a fulfillment of that promise.<p>I don't know if this is explicitly HN-worthy, given that it's not a programmatically-impressive web app or a strictly technical exercise. But given the publicity that Amit's search for a donor has created for the cause, and some previous posts highlighting concerns around bone marrow donation, I felt like this submission may be relevant to the community. In the end, hacking is very much about finding a problem and solving it using technology. I was dissatisfied with the websites I found and the explanations I was given, so this is my attempt to solve that problem.<p>If this post gets any notice, the website may very likely go down given my shared hosting plan. I apologize in advance for that.
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cabalamat超过 13 年前
Not to put a downer on what is a worthy idea, but:<p>&#62; A small percentage (1.34%) of donors experience a serious complication due to anesthesia or damage to bone, nerve or muscle in their hip region.<p>There are <i>very</i> few things I would consider doing if they involved a 1-in-75 risk of serious health problems, <i>particularly</i> in a country like the USA where access to medical care is not a given.
newhouseb超过 13 年前
This is awesome, however I think it needs to be promoted much louder that you can get a cheek swab kit sent to you via mail for FREE by signing up at <a href="http://marrow.org/" rel="nofollow">http://marrow.org/</a>. I think most people look at sites, like this one, wanting to help but not understanding that it's so incredibly easy to register and you don't have to drive off somewhere or schedule anything.
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avgarrison超过 13 年前
Beautiful website. Also, I don't normally read the About section of websites, but your Founder's Story was excellent. Very well written, couldn't stop reading it: <a href="http://www.cheekswab.org/about-cheekswab/founders-story/" rel="nofollow">http://www.cheekswab.org/about-cheekswab/founders-story/</a><p>I don't have any technical feedback for you on the site, but I will say that it has finally pushed me over the edge. I just ordered the kit. Thanks for putting the site together, I think you've made a very nice contribution to the web and to humanity.
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markerdmann超过 13 年前
Great work on putting the site together. The design is beautiful. I was able to find the theme on themeforest, but it looks like you customized it in a really nice way. May I ask who designed the logo and background?<p>By the way, if anyone else is looking for the theme, you can find it here:<p><a href="http://themeforest.net/item/etherna-powerful-and-flexible-wordpress-theme/462474?WT.ac=search_item&#38;WT.seg_1=search_item&#38;WT.z_author=EvGreen" rel="nofollow">http://themeforest.net/item/etherna-powerful-and-flexible-wo...</a>
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leeb超过 13 年前
I think this looks great, and hopefully will encourage a ton of people to join the registry! My only feedback is - I think the slideshow on the homepage moves a little fast. When I went to the page and started reading, it moved on to "Joining the Registry" before I finished reading. I'd recommend either slowing down the progression, or making it all manual (only change when the user rolls over a section).
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aristus超过 13 年前
I suggest also encouraging people to go donate whole blood, and signing up for the marrow program there. Maybe even help them find a collection place and set an appointment. Two birds, eh?<p>I've donated blood, platelets and (last year) 1 liter of bone marrow. As feel-good as it is to help a specific person against very large odds, blood and platelets help many more people.
conradr超过 13 年前
Lovely site, the only comment I have is a more urgent call to action and in this line "Please consider joining the National Bone Marrow Registry today, and enter the lottery to save a life." I expected the "enter the lottery to save a life" to be a link or call to action.<p>So I would either take the red away or make it go somewhere, perhaps the registration?
konstruktor超过 13 年前
I absolutely love your calling the site Cheekswab, a constant, subtle reminder of how easy and painless registration is. However, I agree with others that what's missing is a clearer action call. Also: will non-minority donors ignore the site as soon as the purpose of recruiting minority donors is stated? edit: grammar
timcederman超过 13 年前
I just wish "Be The Match" (marrow.org) was a better run charity.<p><a href="http://www.charitynavigator.org/index.cfm?bay=search.summary&#38;orgid=9042" rel="nofollow">http://www.charitynavigator.org/index.cfm?bay=search.summary...</a>
Blocks8超过 13 年前
The site looks great-- I think the purpose that it serves is very inspiring. Continue to tell stories like yours on your site, and I'm sure it will reach the audience you want faster.
charlesju超过 13 年前
This looks great, but I'm sure if we were able to see who was registered and not registered online, it would help accelerate registration. What are the complications here?
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orky56超过 13 年前
Thanks so much for making a site like this and sharing it on HN. It was veyr informative and inspired me to sign up. I have a kit on the way!
mattquinn超过 13 年前
Didn't expect to see familiar photos when I visited the site, I'm a 3rd-year at UVA right now. Sick site man, and for an excellent cause.
rorrr超过 13 年前
The main problem with the involved donations like these (from my laymen perspective) is to <i>convince</i> me, the visitor, to donate. Everything else is much lower priority.<p>While your site is informative, and pretty, it doesn't convince me. There's no call to action. There's no short one-sentence explanation that it's safe. There's a ton of visual distracting stuff on the front page.<p>I think this is a much better approach:<p>A good photo of a female patient or a baby, and words:<p>"Donate bone marrow"<p>"Save her life"<p>"It's safe"
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