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Ask HN: Have you ever tried to find clinical trials for yourself/a relative?

1 点作者 cjbarber超过 11 年前
If you have, what resources did you use? How did you find it? Any tips? Were you able to find a trial?<p>A friend of mine has been in the medical industry for a while and is working full time trying to solve this - he searched for 12 months trying to find experimental trials for his grandfather because the prescribed drugs weren&#x27;t having an impact, unfortunately to no avail.<p>If you are in PA&#x2F;SF I&#x27;d love to email&#x2F;skype&#x2F;meet&#x2F;eat&#x2F;coffee&#x2F;etc :) (and so would he!)

2 条评论

vwinsyee超过 11 年前
I&#x27;m almost certain that your friend has already looked at <a href="http://clinicaltrials.gov/" rel="nofollow">http:&#x2F;&#x2F;clinicaltrials.gov&#x2F;</a> given his background and time looking. But I&#x27;m not sure where else he would be able to find a listing of reputable, vetted clinical trials especially for those in the U.S. If his grandfather&#x27;s illness has a support association (i.e., of other patients with the same or related illnesses), perhaps members of that association might know of upcoming trials.
评论 #6300335 未加载
ljoshua超过 11 年前
I helped a well known cancer center create an internal mobile app that allowed doctors to browse and filter a listing of all their current clinical trials. They had the information available in a database and exposed it via an (again, internal) API. However, I&#x27;m sure that talking with the right people would allow access to the list as well, so directly contacting research organizations would probably be just as fruitful.